Laserfiche WebLink
RESEARCH AGREEMENT NO. 2024-161 <br />PAGE 3 OF 9 <br /> <br /> Page 3 <br /> <br />Researcher agrees to verify whether or not IRB approval is required for this research, and to advise the <br />Department in writing in advance of receiving any information under this Agreement if such approval has <br />been granted or is not required. If an IRB is required, its disposition of data requirements must be <br />consistent with those in this Agreement and to the extent they are more permissive the requirements of <br />this Agreement take precedence. Researcher also agrees to provide the Department with a copy of a <br />final IRB approval within 14 days of approval. <br />Researcher represents full knowledge of and compliance with all applicable legal and administrative <br />requirements relating to the use and confidentiality of information that may be provided under this <br />Agreement, and administrative requirements of the Researchers organization, including but not limited <br />to: <br />1) The provisions of 28 CFR, Part 22 Confidentiality of Identifiable Research and Statistical <br />Information, including provisions for Information Transfer Agreement in Part 22.24 (C) and for <br />Sanctions in Part 22.29 thereof, <br />2) RCW Ch. 10.97 Washington State Criminal Records Privacy Act, <br />3) RCW 13.50 Keeping and Release of Records by Juvenile or Care Agencies, particularly <br />juvenile information requirements specified in RCW 13.50.010 (8) and RCW 13.50.050 (23), <br />4) RCW 42.48 Release of Records for Research, particularly RCW 42.48.040 Disclosure by <br />Research Professional; <br />5) RCW 42.56 Public Records Act; <br />6) Researchers organization internal standards for and human subjects research oversight; <br />7) All relevant U.S. Department of Health; and Human Services guidelines relating to the <br />governing the protection of human subjects in research including but not limited to the <br />regulations in 45 CFR 46; and <br />8) The Health Information Privacy Act (HIPPA) to the extent it may apply. <br /> <br />All information and/or data received pursuant to this Agreement shall be stored in password protected <br />external hard drives. All electronic data, particularly that on any laptop or removable storage media, shall <br />be protected by encryption to the standard required by the Researchers organization for the handling <br />and storage of human subjects data. <br />Researcher shall notify the Department in writing of any loss of any copy (electronic or physical) of any <br />information provided, or any attempted unauthorized access to systems containing the information <br />whether or not access or loss resulted. <br />Researcher may not publish or in any other manner publicly refer to any Department employee by name, <br />serial number or in any other manner that permits their identity to be determined. <br />Researcher may not publish or in any other manner publicly refer to any other person whose identity, <br />address, birthdate or any other personally identifying information may be intentionally or accidentally <br />included in information provided by the Department. Researcher will immediately notify the Department <br />if Researcher receives individually identifiable personal information the release of which is not specifically <br />contemplated by this Agreement. <br />Researcher is authorized to release, to a designated public repository for their academic institution or as <br />a condition for publishing in a peer reviewed journal, a version of the data, provided: no location specific <br />information is made available more precise than the Census Block, the data is explained or otherwise <br />accompanied by a codebook (as would be produced by a statistics packages such as SPSS or Stata) <br />and the data is acknowledged as a “snapshot in time”, sufficient that anyone using the data would be <br />reasonably aware the data is likely to be different from a future extract of the same type.